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Chronic Pain, Fibromyalgia, Chronic Fatigue Syndrome, & Other Medical Information

~A Medical Information Network for patients and health care professionals.~
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~This web site has been designed to be accessible to people with disABILITY.~

    So many people on the planet today are affected by chronic pain and related illnesses.   I am one of them.   Treatment can be elusive, but more understanding of these conditions is coming to light every day.   There are both answers and hope for us and for those who live with us.

Table of Contents

DISEASES AND CONDITIONS

  • Chronic Pain.

  • Pain Law and Policy

  • Cancer Pain, Trials, Information

  • Chronic Fatigue Syndrome  -  (CFS/CFIDS)

  • Fibromyalgia  -  (FMS/ME)

  • Mycoplasma and CFS, GWS, FMS.

  • Reflex Sympathetic Dystrophy  -  (RSD/RSDS)

  • Myofascial Pain Syndrome

  • Trigeminal Neuralgia

  • Crohn's and other Bowel Diseases

  • Headaches  -  Migraines

  • Lupus

  • Sarcoidosis

  • Arachnoiditis

  • Arthritis

  • Anorexia

  • Diabetes

  • More CFS, FMS, ME, GWS, MCS Links

    DISABILITY, SOCIAL SECURITY, WORKERS' COMPENSATION

  • Social Security Disability (SSDI) Page.

  • Applying for Social Security Disability benefits.  Updated 8-14-99.

  • Worker's Compensation

  • Medicare

  • Disability services, aids, clinical trials, organizations, federally funded programs, medical equipment exchange service, free air transportation, and more.

  • Resources

  • Pain Medications

  • State Pain Treatment Guidelines.

    DOCTORS, HOSPITALS & CLINICS

  • Doctors, Hospitals, and Clinics  -  Locating and certifications.

    SUICIDE/CRISIS INTERVENTION, DEATH/DYING/GRIEF RESOURCES

  • Suicide Prevention/Crisis Intervention Centers

  • Death, Dying, and Grief Resources

    OTHER

  • Mental Health

  • Medical Journals

          The content provided on this web site is for information purposes only.  It is intended to provide educational material and is not designed to provide medical advice.  Because medicine and healthcare practices are growing and changing rapidly, some of the information on these pages may have changed in some way or may be subject to debate.  This web site does not provide professional medical or healthcare services.  Please consult your own healthcare provider regarding any medical issues relating to diseases, conditions, symptoms, diagnosis, treatments and side effects.
                    Lois Randall, Webmaster

    Mycoplasma and CFS, FMS, GWS

      Dr. Garth Nicholson discusses mycoplasma.  -  Chronic Fatigue Syndrome Radio Show on Jan 4th, 1998.  Dr. Roger G. Mazlen, Host with Dr. Garth Nicolson.

      The Institute for Molecular Medicine.  -  Dr. Garth Nicholson's home page.  Click the Gulf War Illness button for Studies on Chronic Illnesses: Gulf War Illnesses and Chronic Fatigue Syndrome/Fibromyalgia:   "Identification of Mycoplasmal Infections in Gulf War Illness Patients" and other articles.

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    Suicide Prevention/Crisis Intervention Centers

            At a crisis center trained counsellors in suicide intervention are available to talk to one 24 hrs a day.  Please call if you need to and please don't hesitate.  All life is precious and chronic pain can always be better managed with the perseverance to find the proper medical help.  Don't give up hope.

      U.S. Crisis Centers.

      Canadian Crisis Centers.

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    Mental Health

      Internet Mental Health.

      Mental Health Net.

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    Doctors, Hospitals, and Clinics

          Note:  Remember, if your doctor is not listed in these services, that does not exclusively mean that he/she is not Board Certified.  Check further.

      AMA Physician Select.   A reference source of demographic and professional information on individual physicians in the United States.  Search by name or specialty.

      Certified Doctor  -  Free login to verify that your specialist is board certified by the American Board of Medical Specialties (ABMS) or search for a physician in your area.  1-800-766-2378.

      Hospital Locator.  Best hospitals locator by U.S. News Online.  By name, location, or specialty.

      MGH Physician Referral Service

      Public Pain Information

      Worldwide Congress on Pain.  State-by-state listing of pain clinics and pain specialists.

      Search for pain programs by zip code in the American Academy of Pain Management's Pain Program Directory.  The pain program listings contained in this directory have been compiled through information supplied by the individual programs listed and do not constitute an endorsement.

      American College of Surgeons.

      American Medical Association (AMA).

      The Federation of State Medical Boards.

      U.S. Medical Licensing Examiners Information on Federation of State Medical Boards (FSMB) and its Board Members.

      Directory of Canadian Pain Clinics and Pain Specialists.

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    Disability Services, Aids, Clinical Trials, and Resources

      Drug Companies' Free Medication Programs.

      Handicapped Individuals and the Law.  -  Internet Law Library, excellent disability resource.

      NORD (National Organization of Rare Disorders) has launched a medical equipment exchange.  At this site you will be able to trade, buy and sell used medical equipment such as wheelchairs, hospital beds, etc...  This is especially good for those whose insurance will NOT reimburse the cost of these items.

      NPATH (National Patient Air Transport Helpline) will assist financially needy patients with charitable medical air transportation referrals.  They provide NO COST referral to all appropriate known charitable medical air transport options.

      CenterWatch Clinical Trials Listing Service.  You can use this web site to find a variety of information related to clinical trials.  This web site is designed to be a resource both for patients interested in participating in clinical trials and for research professionals.

      I am so impressed with Lorraine Forman's Letters to the Editor.  This is a wonderful guideline for chronic illness sufferers telling us that life goes on and giving great tips and advice.

      Assistive Technology On-Line.  Devices, services, organizations, federally funded programs, and more.

      Medication Manufacturers' Indigent Drug Program.  -  If you qualify, you may be able to get your medications FREE!

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    Medicare

      Medicare Consumer Publications.  The US Health Care Financing Administration provides this selection of consumer publications on Medicare, long-term care, and other health care issues.  Users will find the 1997 Medicare Handbook, the 1997 Guide to Health Insurance for People with Medicare, a guide to selecting a nursing home, information on skilled nursing facilities for Medicare beneficiaries, and an overview of Medicare Managed Care.

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    Medical Journals

      Journal of the American Medical Association (JAMA)

      New England Journal of Medicine (NEJM)

      Between Rounds

      British Medical Journal

      The Lancet

          To access the full text articles in the following journals, you will need to Register Free once with Medscape and get a password if you don't have one.

      Clinician Reviews

      Emerging Infectious Diseases

      Infections in Medicine

      Hippocrates

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    Resources

      Here is a list of very useful LINKS to sites addressing CFIDS, CFS, ME, FMS, GWS and more.

      Case Management Resource Guide - Online offers free access to a fully searchable database covering over 40 categories of healthcare services, including homecare, rehabilitation, long-term care, behavioral health, specialty services and disease management.  Based on the Center for Healthcare Information's annual print directory, this site lists more than 110,000 healthcare facilities, businesses and organizations.  Over 2,000 health organizations, self-help groups, clearinghouses, government agencies and associations are also listed.  The site also offers online continuing education courses for case managers.

      Assistance at the Medicine Program.  Free prescriptions for those who qualify.  There is a $5 refundable processing fee.

      Doctor's Guide to the Internet

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    Death, Dying, and Grief Resources

      Webster's Death, Dying and Grief Guide.

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    Additional CFS, FMS, ME, GWS, MCS Links

      M.E.P.C.  The M.E.P.C.'s aim is to publicize M.E./CFIDS related issues to the press and general public using eye catching and concise pre-prepared letters , press-releases, web sites and posters.  Even passing the word about M.E.P.C. will help.

      Illnesses.  -  Earth Rules created by Linda Stanley.

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    Last Updated February 15, 2010


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